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People With Lyme Disease Feel Terrible

People With Lyme Disease Feel Terrible

People with Chronic Lyme Disease feel terrible. Imagine feeling exhausted most of the time, having no energy. You hurt everywhere, especially in your joints. The pain can be severe. You may be nauseous every waking minute and eating takes effort. Brain fog is persistent, and you cannot concentrate. Headaches are a daily occurrence, with light and sound sensitivity that drives you away from people and into your home. Depression is pervasive, and sometimes ideas of suicide enter your thoughts. Neurological symptoms, such as tingling and numbness, and electrical, painful shocks travel up your arms and legs, coming and going. It is hard to get out of bed in the morning and function in daily life activities.

Besides feeling terrible and having to struggle to get from place to place, you go to one doctor after another who tells you there is nothing wrong because all the test results are negative. Then you are offered an antidepressant because it must be all in your head. Unfortunately these are bacterial and parasitic infections affecting different parts of the body, antidepressants are usually ineffective.

Later you are sent to a specialist, a rheumatologist or an infectious disease specialist, and they again do testing which is negative; therefore, again it is believed you don't have any disease. Instead of looking at the clinical picture being presented to them, these physicians say there is nothing wrong. It is implied that it is all in your head. Over and over again, this scenario plays out until you feel like you are going crazy.

Family members look at you like you're going insane, and your loved ones begin to turn away from you. However, you remain caught in this horrible cycle of feeling terrible, not able to function on a daily basis, and in pain most of the time. It is devastating in every which way *Physically, Emotionally, Spiritually, Mentally, and Financially. The emotional cost to a patient and their families is horrendous. How does an ill person participate in life? Many people with Chronic Lyme Disease are dependent on family and friends to take care of them, to prepare food for them, to do errands, to pick up their medicines, to call the doctor and arrange for appointments, to help with their children, if they have any. *Basically any activity healthy people take for granted.

Health Insurance

Since health insurance will not pay for a problem that does not exist, the costs are extremely high. Not only must you pay for a health insurance policy and the attendant co-pays that go with it, you go to doctors who say nothing is wrong. Then you seek out, if you are lucky to find one, a Lyme-Literate provider who does not take your insurance. Most Lyme specialists have cash practices because they could not stay in business otherwise. It takes one to two hours in an initial visit to tease out the problems and begin to address them. At your primary doctor's office, you pay your co-pay, the doctor bills your insurance the remainder, and this doctor only spends five to ten minutes with you. How can anyone know what is going on in such a short period of time? It is not possible. Your story, your symptoms, how you live on a daily basis are important in diagnosing your illness and deciding on the first step in treatment.

"Western" vs "Eastern" Health Care

There are many differences between the way Western health care and Eastern health care deal with Lyme Disease and other co-infections. While most of the providers who practice in our current system fail to acknowledge Chronic Lyme Disease, it is often an acupuncturist or naturopathic physician that suggests the possibility of Chronic Lyme Disease to a person and gets them to begin looking for other providers who understand what they might be going through.

In an integrative practice, the best of both worlds are utilized in a blended way by using herbals, neutraceuticals, and antibiotics. Using nutrients and herbals, instead of drugs, can control many chronic conditions, as they have fewer side effects and are accepted by the body more readily. There are herbal tinctures specific to the treatment of Lyme and the co-infections that work well in combination with antibiotics. As well as other supplements utilized to help the body clear toxins from the bugs and support the lymph and liver system.

As a knowledgeable health care provider and Lyme Literate, I find it incomprehensible that the current medical system shuns and marginalizes people with Chronic Lyme Disease. The suffering this disease can cause exemplifies this is wrong and shows the need for a place those with Chronic Lyme Disease can find Solace, Support, and Respect, as well as treatment that moves them toward a healing state.

Blessings, Mara

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Lyme Disease Testimonials

Dr. Andrew Chevalier, ND
"I’ve been suffering from a horrible disease for around 11 years. I’ve been neglected by doctors for about eight years, told I was crazy, that my disease is all in my head, there’s nothing they can do about it, etc. When I came to this place I was overjoyed, I’ve cried with happiness because of finding this place. This medical team is absolutely phenomenal and I would give them five stars and a 110% recommendation. This is something that is saving my life, and I know many other people that have the same experience as I do. They..."
Dr. Andrew Chevalier, ND
"Dr Chevalier and his team have created a very high quality practice over the past year. I am a very well-trained surgeon with very high standards, and have been very pleased and impressed with the quality of care this team provides consistently. Dr C has assembled a very bright and high quality team including Briana, the very bright, competent and professional practice manager, Rene a very skilled iv nurse, and Kacey and two superb phlebotomists, Amy and Summer. Dr Chevalier's focus is on interventions which strengthen the patient's own health and immune system. This approach has been invaluable for..."
Dr. Nicole Schertell, ND, CCT
"Honestly, Dr. Scherell was my last stop. After years of being passed around, I had one foot in the grave. I could barely function. Today my life is so different. After being diagnosed with Lyme disease in 2013, Dr. Schertell started treating me. She has done for me what no other doctor could do. She is very smart and I love her dedicated staff. I owe them my life."
Dr. Nicole Schertell, ND, CCT
"A lot of people say that you cannot "cure" Lyme disease, but I have been Lyme symptom free for over 7 months now. I am now focusing on healing my body and balancing hormones. Dr Shertell saved my life! "
Dr. Jennifer Smith, ND
"I had my first appointment with Dr. Jennifer Smith this week. I have been to over 100 doctors in nine years. With Dr. Smith, I loved how she didn’t make assumptions or jump to a conclusion after I handed her my list of symptoms and past blood work. She took the time to understand the history and then ordered more testing. She did some other tests and was just very compassionate and understanding. She knows people like me have been through a lot. I would highly recommend you see her even if you already have a Lyme doctor. She does..."
Jennifer Goldstock BSN, MSN, ANP-BC
"Listen up folks !!!!! I had some bad experiences through misdiagnosis and courses of treatment until I was finally recommended to Jen and her staff at synRG Integrative. The compassion, knowledge and understanding from the moment I walked through that door is something I will never forget. Lyme is a terrible, painful and debilitating disease. Jennifer and her staff (Katie and Julie are incredible passionate people) are with you every step of the way during your course of treatment. I normally don't complete reviews, but I had to in this case to recommend synRG Integrative to..."
"If you want to get better from Lyme disease with lots of co-infections, then I suggest that you see Dr. Richey! Do not waste your money elsewhere! She and her family have Lyme disease, too, and she has a vested interested in keeping up-to-date on Lyme treatments. She knows what we are going through because she has gone through the same thing. She will understand you!"
Dr. Lesley Fein, MD, MPH
"Typically, I do not leave reviews, however after my experience with Dr. Fein I feel an obligation to do so. Let me begin by stating I have seen many specialists over the years after I was misdiagnosed for 10 years and was bound to a wheelchair. When I met her I had to choose between her and Dr. Frid of NY who, at the time, was treating me. I’m glad I chose Dr. Fein. Not only is her knowledge of this disease unmatched, but she is humble, caring, and listens to your concerns, in fact there..."
Mary-Beth Charno, RN, MSN, ANP-C
"I can't speak highly enough about Mary-Beth. She was a tremendous help when I was diagnosed with Lyme this past year. Her expertise in the area of Lyme disease and co-infections is such an asset to the healthcare community as it has become so prevalent today. Additionally, Mary-Beth's background in both conventional training as well as functional medicine is invaluable as well. Her approach to treatment not only includes addressing the symptoms of the infection, but she also addresses and supports the whole person. As a result, the common side effects of the treatment were lessened and I tolerated treatment..."
Dr. Charles Crist, MD, PC
"I have been under Dr. Crist’s care now for about 6 years, and I can honestly say he saved my life. After 10 ½ months of being misdiagnosed and basically abandoned by my family doctor and the local medical community, I was feeling pretty lost and hopeless. It’s hard to describe how much hope my first appointment with Dr. Crist gave me, because I had gone through months of seeing doctors that told me anything from “Lyme Disease doesn’t exist in Kansas” to “You’re just depressed.” Dr. Crist is everything all of those doctors were not: he is kind, knowledgeable,..."
Dr. Seth Osgood, DNP, FNP-BC, EMT-P, IFMCP
"I’ve been a patient of Dr. Seth’s for the past year and my husband has been a patient for the past two years. He is incredibly knowledgeable, researched, compassionate, caring and detailed. He’s a good listener, too. Dr. Seth has helped my husband successfully gain control of his Rheumatoid arthritis without drugs and he is now in remission. I had been to countless doctors over the years trying to find a cause for my ongoing fatigue and muscle pain. Dr. Seth was the only medical professional who took the time to dig deep and tried to find a root cause...."
Rita M. Rhoads, MPH, CRNP, CNM
"I would have died if I wouldn't have gone to see Rita. I had every lyme disease symptom you could possibly imagine. After working with Rita a few years ago I can live a normal life again. If you have lyme disease or think that you might, I would highly recommend her. She literally saved my life."
Dr. Andrew Chevalier, ND
"I went to Dr Andy Chevalier on April 11th of 2018 for umbilical stem cells. I had Aplastic Anemia from Lyme, Bartonella, CMV, and EBV entering my bones. Her I am one month later able to walk, run, swim, no pain except a little left in my neck and back, no seizures or migraines, able to handle an entire day of doing things I love and want to do. I owe him my life. The only thing I wanted to do but couldn’t was take him and the entire staff home with me. Amazingly beautiful souls!!! Niki ..."
"I want to thank Dr. Richey for her expert care. She literally saved my daughter's life when no one else would take me or her seriously! I greatly appreciate her thorough attention."
Dr. Tenesha Wards, DC
"I've been sick for 20+ years. The last 10 have been spent in the bed. I've been to EVERY specialist there is in my area and Houston. They piled pills upon pills to treat my symptoms and labeled me with "fibromyalgia." I knew that was not the problem, but finally just accepted I would never get better. One day while sitting on my floor exhausted, crying, scrolling through Facebook, an ad popped up for Doctor Tenesha Wards. She described me and my life and my symptoms completely and said there was an answer. For the first time, I..."

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